This is a work in progress(as I am!)I need somewhere to talk and just not worry about judgement or criticism,whether it be constructive or otherwise.I want to just let my thoughts and feelings out.It will mainly be about having and trying to live with Multiple Sclerosis but I'm sure other things will come up too. You are welcome to read but do NOT mock me and if I offend you just stop reading.

Tuesday 10 June 2014

Bit of a set back

Disappointed that i've needed to start taking steroid tablets.Been struggling physically for a few days and was unable to walk for a bit Sunday,I'm hoping that by taking the tablets now I can avert a full on relapse.It's been a little over 3 years since the last big one that caused permanent damage,the Tysabri infusions are doing their job well.
There has been a few minor issues in that time but I've just taken the tablets for 3 or 4 days and it's settled down any inflammation going on,I think though this time could be a bit different. I've had a couple of months of emotional turmoil like I've had before the other big ones,it's hard to explain without sounding like a pyscho,I have become very withdrawn and needing to be alone but very lonely and sad and positive that everyone is against me and doesn't want to be around me.Which could quite well be true given that when i'm like this i'm a pretty crappy friend.I get very paranoid and forget that just because i think something doesn't mean it's true.
I have isolated myself partly because I don't know how to be and partly because it's hard for me to get anywhere and i hate asking for help all the time,it's just easier to be home.I don't even want to talk to anyone on facebook anymorw cos i'm tired of dragging people down with my sadness and i hate faking happiness.It makes me feel like i'm lying to people and i don't want to do that.
Anyway hopefully the steroids work cos if I'm nuts now I dread how bad I'll be on a sreroid infusion!! Avoiding it at all costs,no sleep,crazy thoughts,too much energy without the physical capablilty of expending it,last time round i barely clung on,i don't want to do it again

Monday 2 June 2014

Still blank

I decidedI do need to write but i don't want to share,that might seem a bit silly but what I mean is I won't be putting it on facebook.If people stumble upon it then so be it,I guess they were meant to see it,I just wAnt to be able to express myself when i need to but as it's just gone midnight it won't be now!