This is a work in progress(as I am!)I need somewhere to talk and just not worry about judgement or criticism,whether it be constructive or otherwise.I want to just let my thoughts and feelings out.It will mainly be about having and trying to live with Multiple Sclerosis but I'm sure other things will come up too. You are welcome to read but do NOT mock me and if I offend you just stop reading.

Saturday 11 August 2012

Not much to say

I don't really know what to say any more,It's kind of all just rolled into one day after another just doing the same thing and hoping that tomorrow will be a bit better than the day before.
I try not to think too much,I end up feeling crappy if i do,so it's better if I don't.
Had Tysabri yesterday,went well apart from the usual hassle with finding a good vein.Next week I need to go to the RAH for another JC virus blood test.I'ts an awkward hospital to go to,there's very little parking close by and means a fair bit of walking.Oh well,I'll get over it!
I think this blog might have passed it's use by date,I'm sruggling to write anything and I'm boring myself with what I can think of.
I suppose I could dig down to that bottom less pit of sadness that's inside me but I'm tired of being miserable.I'm sick and tired of being sick and tired and really don't want to take mself there unless it's really necessary
I started taking more Kali-Phos tablets theu out the day and that seems to have helped a fair bit with the tremors.I also upped my vitamin D dose,not sure if I needed to as I need to go to my doctor and get the blood test results but I figured it's the middle of winter and I haven't been outside much so I guess it won't hurt.
Oh yeah,I ordered a portable ramp online today,it's to go outside the laundry door so I can get the washing trolley in and out easier,What an exciting life I lead!

Sunday 5 August 2012

Back.....kind of

Not sure what to say,been pretty crappy the last few days.That eye thing is horrible,the pain would be bearable if my eye didn't keep leaking.I'm constantly having to wipe it and that seems to start it throbbing which makes it tear up which means I wipe it which starts it throbbing and on and on and round and round.Crazy!!
Then last night had bad tremors and lost speech again,tremors stopped after a few minutes but the speech loss lasted over an hour this time. That is scary,so very scary.Losing my ability to communicate is very scary and lonely,I was trying to point to stuff and do charades to make myself understood but each time I tried to use my hands the tremors would start.Or otherwise my hands would either clench into fists or go rigid and be locked straight.Had to laugh though,was busting for the loo so Robert helped me with my walker,managed to get there fairly okay but walking back to the lounge my legs started doing these weird bending and stretching actions.A bit like the Monty Python department of silly walks!! Knees would come up almost to my chest and then stretch way behind me,I cracked up laughing 'cept there was no sound cos of losing my sound.
This morning I'm feeling good and it's like nothing is wrong. Sure wish it was always like this.

Thursday 2 August 2012

Going into hibernation

Horrible stabbing eye pain is back:o(
Eye is leaking like a tap,I won't be around for awhile need to hibernate 'til the pain stops.
Feel like shit and just need a break,MS never goes on holiday