Thank you Tammy Malkowski.It's like you looked inside me and wrote what I couldn't.
How MS Feels (A Poem)
My hands shake as my words slur,
But it’s not what you think.
I trip and I sway,
Though I haven’t had a drink.
I could fall at any moment.
And this never leaves my mind
But I’m trying hard to manage
As I’m on this MS ride.
My legs look normal
But feel like rubber.
My arms look strong enough,
But melt like butter.
I have slept for hours,
But my eyes still droop.
I want to walk straight,
But my head loop-de-loops.
You think I’m paying attention,
But my mind has wandered away.
I want to speak clearly,
But I’m stuttering today.
I try to read your email,
But I am seeing double.
I want to come with you,
But walking gives me trouble.
I may need your patience
And your compassion too.
But never your pity
For all I have to do.
I need you to be kind.
And try to understand.
I’m living a new life
Doing the best that I can.
I am making an effort
To be someone who
Is making a difference
In my own life too.
Give me a chance
Be on my side
I am still me
Even with all the drama inside.
My body has changed
But my heart is the same.
I still have a beautiful life
Even when playing the MS game.
The thing I need the most
As you try to understand
Is the comfort and confidence
That I still have my friend.
by Tammy Malkowski
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