This is a work in progress(as I am!)I need somewhere to talk and just not worry about judgement or criticism,whether it be constructive or otherwise.I want to just let my thoughts and feelings out.It will mainly be about having and trying to live with Multiple Sclerosis but I'm sure other things will come up too. You are welcome to read but do NOT mock me and if I offend you just stop reading.

Tuesday 27 March 2012

Yesterday

Woke up yesterday morning with this intense eye pain and a feeling of "grittiness" in it,It felt like I needed to take my eye out and wash underneath it.It had been a bit achy for a couple of days but I just thought it was another annoying MS symptom and hadn't bothered too much about it.
Yesterday though the pain began so excruciating and unbearable that I go worried,It was the same pain I had 4 weeks ago when I had the relapse and optic neuritis,the only difference this time was I didn't have the foggy fuzzy vision.
So my daughter came over,she was going to drive me somewhere else but my eye started tearing constantly and I had a steady stream runnimg down my cheek,so she took me to my GP instead.I'd only been on steroids so recently and I was sure it couldn't be a relapse again so soon,it had to be something stuck in my eye that I couldn't get out.
I sat in the car with my sunglasses on and a wet face washer pressed to my eye,I really just wanted to pull the awful thing out and throw it away,finally get in to see my doctor,he looks at my eye goes thru my notes and says "I think you need to go to the hospital" Wonderful!! Sarah had come over after she'd finished a night shift she needed to sleep now she's stuck with driving me to the hospital.
I really hate that this happens and I need to put other people out and get them to take me places,everyone says it's okay and their fine and okay with it but I still feel angry that I can't do it for myself anymore.
Anyway we get to the hospital,wait for a bit,finally get taken out the back area,Woo Hoo the good bit where you get to see someone!! Talk to another nurse,tell her exactly the same thing I've already told my GP and the triage nurse,show her the letter GP had written which I also showed the triage nurse(can't these people read?!) I see a doctor,explain everything to her,show her the letter,she looks at my eye gets me to read an eye chart,then I sit down and wait again,I get given 25mg of prednisolone ,just a bit more to add to the 25mg tablet I had at home and the 2 nurofen they gave me in the waiting room.
The neurology registrar shows up** He shakes my hand and tells me his name is Wilson!! Castaway is one of my favourite films,so there I am in the hospital eye hurting so bad and all I can think of is Tom Hanks standing on the raft screaming "Wilson! Wilson! Don't leave me Wilson!" as the ball floats away(and yes I do choke back tears whenever I see that part of the movie!)** I go thru the story again show him the letter,he starts checking out my eye,shining lights in it,getting me to look up and down,left and right,my poor eye is screaming in pain now and I'm sure it was crying for itself,Wilson! decides to consult with the eye specialist and my neurologist so I go and wait again.Bit more time passes,my neurologist shows up,more questions,more lights shone in my eye,more pain,still waiting on eye specialist so Wilson walks over to the eye clinic and shows him all my notes and gets his consult that way!! I think I like Wilson! My neurologist checks things out again and says "Do you get migraine?" Bingo!! Light bulb switched on.yes I do but I'm strange I get severe migraines but not often  in my head, my back shoulders,neck sometimes my thigh,even my feet and my stomach where I throw up a lot but thankfully rarely in my head.I think I would cut it off if I had this pain in my head.So anyway they do a few more tests to definitely rule out MS as the cause and finally after 6 hours we're on our way back home,me with am eye patch to help rest my eye(anyone got a spare parrot!) Cue the pirate jokes! I am so grateful it's "just" a migraine,I was terrified I was going to need IV steroids,those things mess with me so badly. I asked them how do I know if this eye thing happens again how can I tell if it's a migraine again or an MS flare,if it affects my vision I go to the hospital it's the quickest way to see my neurologist,he said to me come here then you won't have to wait for an appointment! I like this guy! and Wilson! Just wish they looked a bit more like T.V.ER doctors!
So get home,have more drugs*my poor liver* David is annoyed at me cos I didn't ring him or leave a note.We didn't ring anyone cos what can they do? and it's no use worrying anyone 'til we know for sure what's happening,I mean all it would have been is I'm at the hospital don't know how long for don't know exactly what's wrong.Better to wait until I know for sure what's going on and i didn't leave a note cos when I left the house I wasn't planning on being out all day!
Today it's a lot better,probably all the drugs!,I'm now taking migraine tablets every 4 hours,which are making it bearable,and I feel a lot more human.
Hopefully life can get back to being about my usual MS struggles soon!! :o)

No comments:

Post a Comment