This is a work in progress(as I am!)I need somewhere to talk and just not worry about judgement or criticism,whether it be constructive or otherwise.I want to just let my thoughts and feelings out.It will mainly be about having and trying to live with Multiple Sclerosis but I'm sure other things will come up too. You are welcome to read but do NOT mock me and if I offend you just stop reading.

Thursday 12 April 2012

Here I am!!

Did ya miss me?!  I've been sleeping,a lot.When I haven't been sleeping I've just been lying in bed resting and dozing,it's been great!
When you haven't slept properly for so long you've forgotten when it last was,to sleep for 5 hours without waking is amazing! The most I've managed before now is 3 hours straight.The weather has turned cooler,autumn has arrived and with it comfy nights without need of the air cooler on all night( I think the electric company is going to suffer a huge profit loss!)I have just needed to rest the last few days,so I have,the house has suffered for it though.Living with 2 males who don't see dust or cobwebs can be a bit of a problem,but I'll get over it(lets hope anyway!) As long as the important thinks are clean I think I can live with it ( for a little while)
I forget where I'm up to and I don't think it's that important to me now,I had this real need to put things down in the "right"order and time sequence but I think it's lost it's importance for me now.We'll see,I'll probably be freaking out again soon and have to jump back in time to get things down the way it happened when it first happened.
My CCSVI research is still continuing,the more I read the more I want to know and the more interested in doing it I become.Part of it I think is that neurologists are generally dismissive of it and MS Societies are extremely cautious.Drug companies are against it,why endorse a procedure that has no profit attached to it? Yep,I'm still a cynic!!
My G.P. is willing to write me a letter of referral to a specialist who performs it so that's one hurdle out of the way,my main problem now is the doctor I know of is interstate so I will need to book flights and accomadation and stuff.
All problems that can be easily overcome if and when I'm ready,I'm not being my usual self with this,I know it's not a miracle cure and it may not make any difference but not doing anything won't make any difference either so I'm pretty sure which way I'm going to go.
Okay,bed is calling again,it's good to be back :o)

1 comment:

  1. I'm so glad you got yourself some proper rest. You take care, and you know what? No-one ever died from a slightly untidy house!

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